Tired Anyone???

What a day! Reagan had to go to the Dr. once again today with still no result. She has been sick for a week now and we thought that she was getting better, but.... Not sure what is going on with her. We scheduled her G-tube surgery today. We have put it off as long as we can! She is losing weight again and not wanting to eat. So depressing. We really thought things were turning around and she wouldn't have to endure another surgery. If that is not enough, she is also going to have to have some dental work done that will require her to be put to sleep. I am going to try and coordinate everything on the same day as her g-tube but not sure how that will work out! Some days!! Ok, since I have vented and been a Debbie Downer, please pray for Reagan and my sanity! We really need it right now!

Tired Mom

More Blessings!

Brennen on silly hat day! Reagan posing for the camera!

Alabama snow!!!! Dandruff to some!!!!

We are doing good! Reagan is just a sweetie pie. She makes us laugh everyday! She has learned to talk over her trach again and boy does she talk. Allen came in yesterday, while she was in her bedroom, and she heard the beep beep when the door opened and started saying very loudly "Daddy, is that you? Daddy, is that you? Daddy?" until he came to see her. It was so precious!

Reagan got a very good report on March 2. We saw a new ENT Dr. that used a chemical to treat Reagan's stoma hole and it basically melted all of the granulation tissue away! No surgery! Praise God! We were so thrilled! She is feeling so much better now! She is just getting stronger everyday! We are now praying for an appetite so we will not have to do NG's anymore or so she will not have to have a g-tube surgery! So far, she is getting her recommended Pedisure and lots of other goodies as she asks for them. We will do the surgery if necessary, but after all that she has been thru we are just not very excited about any surgery, even though it may seem minor to some. We just pray that God will supply her a hearty appetite. She has gained weight since we have been praying this for her.

She is not doing so well off of her vent. I think she has gotten dependent on it! Prayfully she will be weaned off that again soon. Thank you so much to our friends at PCMC that still check in on Reagan. It is good to hear from you. To a couple of the followers, I have no idea who you are. Could you please let me know who you are? Thanks everyone for all of the prayers! Keep em coming!

Love,

Jeri Ann

Reagan is doing great. Thanks for all of the prayers. She is a much happier toddler. She smiles all the time and is so fun to be around! We can't understand her very well right now because she has some more scar tissue that has grown around her stoma hole, but we are going to have surgery on that next month. Pray that everything goes well. She has lost some weight so she is also going to get a g-tube to help her put on some weight. We are just so thankful that she is doing so well. She is finally interacting with her nurses at home and, of course, they just love her. We have got two great nurses at home that we love and thank them so much for their help.

Brennen and Reagan are both so thoughtful and sweet to each other. She brought him home a little bear from PT the other day and he has slept with it every night since she gave it to him. I just love them so much. They are both precious angels from God. Reagan's "security washcloth" was dry the other day and he got up to wet it for her and put it on her forehead! What a good big brother! I will try to post pictures soon! Enough rambling, Have a great weekend!

Jeri Ann

Blessings!

I think the blue bow is so cute on him!!

Reagan has security washcloths instead of a blankie. She thinks has to have a washcloth on her head at all times!

She loved santa! Can't you tell! Ha Ha!

We are truly blessed! I hope everyone had a blessed Christmas! I know we are so very thankful for Reagan being here with us. We were not so sure how that was going to go in April, but thank you Jesus, she is here! Not always happy, but we are praying that will change. Please pray with us that she will soon be in happier spirits and know that she is loved and that we want her to be a part of everything! It is just taking time. Overall, she is doing good. She has an infection right now and on another round of antibotics but does not act like it is affecting her. Please remember to pray for her tests next month.

Reagan has still been of the vent. A total of 4 weeks now! Her lab work looked good. We will see what they think when we go back in January!
Merry Christmas to everyone. I am terrible and didn't get around to Christmas cards this year. I will do better next year!

Friends!

Nothing like a good friend to cheer you up! Reagan has her friends, Chloe and Josie over right now! Chloe has been reading her books and Josie is watching Tinkerbell with her! She loves them. She feels like such a big girl.
She has been off of her ventilator completely for 11 days! Praise God! Can you even believe it? We are thrilled. We have to take her to our local hosp tomorrow to have some blood work and make sure her levels are as they should be. We are praying that all is well and she is breathing well enough without the vent!
Merry CHRISTmas!!!!

Jeri Ann

Pictures galore!!!

Reagan had a wonderful day yesterday. Praise the Lord. She did alot of talking and smiling. We were going to try to go to church today on this cold cold day, but the choo choo called and I was not going to try to do it all by myself. But, we can praise God here for all of the wonderful things He has done!

Reagan has discovered a new movie. High School Musical. She loves it. I guess all the singing. And the fact that Brennen loves it. I think she watched it 3 times yesterday!

I couldn't decide which pictures to post, so I will just give you a bunch! Enjoy!