Reagan is doing very good. We went for a checkup on Wednesday and got a good report. Her pocket of fluid in her belly have decreased significantly but are still visible on her CT so he wanted to keep her on the iv antibiotics for another 14 days. He was pleased at how well she was doing and even weaned her vent some. He went down on her pressure support and told us not to try to wean her off of the vent right now. He tried it in the office and she was having to work harder.
She is so funny and happy! She can light up your day!
We are praying about the decision to go to Utah and have more neck surgery. We spoke with Dr. Brockmeyer and he said that she would eventually need to have it done and whether or not we did it really soon or waited till she got a little better was up to us! Her CT scan didn't look much different to him than it did last year but he said the we would not want to wait too long or it would be too late to fix anything. He would go in through her jaw or on the side of her neck! Decisions decisions!!!!!!! No stress at all in our lives!!!!!!! Please join us in prayer for wisdom on what to do. We thought we made the best decision last year and it didn't end up so good so we are so afraid to mess anything up. Especially since she is doing so well!
We meet with the GI surgeon next month to discuss when to reverse the ostomy. Please pray that all goes well when they do put everything back together. It has not been as bad as I thought it would be. Just like changing a dirty diaper. Baths are a little different, but have been since last summer when she got her trache!
We have a lot going on and are very very busy, but we are so blessed! She teaches us so much everyday! We love her and Brennen so much!
The other day Brennen and I were making a card for a little girl who has cancer and I ask him what verse I should put on her card. He told me John 3:16, For God so loved the world, that He gave His one and only son, that whosoever believes in Him, will not perish, but have everlasting life. Thanks for the continued prayers and support.
The McBride's
skip to main |
skip to sidebar
The Primary Children's Hospital is at the bottom of the mountains
This blog has been created for our precious angel, Reagan. She has been such a blessing to us and we want to share her story with others who love and are praying for her.
About Me
- McBride Family
- It is a miracle that I was born okay with a last minute decision for a C-section. At three months old they realized I had a brittle bone disease, Osteogenesis Imperfecta, and multiple broken ribs and other fractures. After a lot of procedures, countless broken bones, and abounding tender love, I am fighting for my life today, but always find a way to make everybody smile.
SlideShow
Followers
Osteogenesis Imperfecta Site
Church Blog
hospital buddies
Salt Lake City
The Primary Children's Hospital is at the bottom of the mountains
6 comments:
i miss ya'll! very glad you are doing well though!!
yay!! i love good news!! im so upset i didnt get to say bye when y'all left!! i would have helped y'all out the door!! i cant wait to see y'all again!! you all are in my prayers!!:)let us know about the bday partay!!:)
You are still in our hearts. We will pray the answers you need will come.
Love,
The Brimleys
Hi Ms. Reagan -- So glad you are doing so well at home! Sending you lots of hugs and kisses :) We are praying for you all to hear from God on what to do about the surgery. We love you all, Dav&Cindy :)
I am loving this good news!!! We are keeping ya'll in our prayers and thoughts! Reagan is such a tough little girl!
I am glad to hear things are going well! I will keep you all in my prayers, and know that you will make the decision best for Reagan and your family. I really liked the verse Brennen picked. He is a great little man! If you do end up venturing out to SLC, let me know so I can come say hi during your stay! -Megan, Child life specialist PCMC
Post a Comment