Pictures

Reagan is having a pretty good day today. She is just really tired. She has had a rough couple of weeks. We are praying that the Dr. will wean a little when we go back to B'ham on Monday. Pray that everything goes well with no complications. We are only planned to stay for two days and we are praying that is it. Reagan has a long list of things that she has to get checked out so it will be a long few days for her. All of the prayer warriors reading this, pray for me. I have been so stressed out lately! I know God has a plan and a purpose, but some days are just discouraging. When Reagan is just not doing so hot! I know God has brought her this far and has her in His arms, but some days are crazy!!!!!!! Maybe today she will feel even better. Enjoy the pictures! Thanks a bunch!

Tiffany (Tiff-N-O) We love her! Our friend from Utah (Grayson's mommy) Pray for Grayson. He is having an MRI in a couple of weeks.

Pray

Sorry for not having pictures. I promise the next time I write I will download some. Reagan has not been so great for the last few weeks. She has been to the dr.s 4 times in the last 2 weeks. She has had 2 rounds of IV antibotics trying to kill whatever it is that she has caught. Now she is taking one for yet another UTI. She has been running high fevers and just can't get comfortable. Poor Reagan. Please pray for her full recovery soon. I am stressed out when she feels so terrible and there is nothing I can do. It's been one of those weeks!

Daddy is not feeling too much better himself. We think he caught it from Reagan! Isn't it too early for everyone to be getting so sick??? Brennen is doing great. Little Monster at times, but doing great. He is still loving school and learning to read. We are so proud of him too!

Jeri Ann

Halo-less Reagan

Reagan had her halo removed and is doing great. She truly blesses us everyday. I will try to post pictures in a few days. She looks great. The four holes in her forehead are looking great also. They are going to heal up fast. The two on her right side do not look so hot but they will eventually be covered up by all of her hair. We were told by B'ham that she needed to wear a neck brace for a while to help support her head while her spine is still fusing! We were told in by Utah that it was a complete fusion and no need for neck brace, so who knows. Allen was happy for the neck brace. He is a nervous wreck about the whole thing anyway. I think he wanted to leave the halo on permanently so there was no chance of her moving her neck! Ha! She is doing good and we are praying that she will eventually be weaned from the vent. She is breathing alot on her own! She gets very upset when she is off of it and tries to talk and she can't. The dr. is going to do some weaning next week and then she will have a sleep study Oct. 6 to make sure she is doing ok on those settings!
Brennen is doing good. Loving school and his teacher. She is really sweet and puts my mind at ease about him being away from me all day long. That was so hard for me to send him to school. My baby is growing up!!!
Allen is working all the time. Gotta love it!
Jer

Praise the Lord! Reagan's spine is fused! Dr. Brockmeyer, the neuro in Utah, looked at the scans from the ER a few weeks ago and said it was a solid fusion! The halo can come off. She is fused from her skull to her thoraic spine. We are trying to line things up with B'ham so not excatly sure when it will come off, but hopefully sooner than Oct. 6th now! I can't wait to hold her again!!! We are praying all goes well and we have a quick stay and back home again. She will have to go back to B'ham in Oct for another PAM treatment that she gets once every 3 months for her bones, along with many other tests, but hopefully that will just be a day or two at the most. Thanks for checking in.
Jer

Reagan is having a good day! Enjoy the pictures!



Reagan at the ER a few weeks ago! As you can tell, she was happy and smiling for the camera with Uncle Doug and Daddy! (Still haven't heard back from the dr's)
Stephanie and Jessie from Med Call taking care of Reagan at the Walk-a-Thon for Easter Seals!
Reagan having a blast with Chloe at McDonald's. She loved being out of the house!!!
Everyone at Mickie D's.
Brennen and Reagan being silly!

Aren't we funny?
Aren't I beautiful?
Brennen's first day of school! So Handsome!

I am wanting something!!! Probably M-N-O's!!!

What a Wonderful Day!!!

Reagan got to see trees today! The things we sometimes take for granted! Easter Seals Rehab had their first ever walk a thon to raise money for the wonderful services they provide and Reagan got to be there! Med Call ambulance service came to the house and carried her to the park. It was so good for her to be out. It was a perfect day! Not too hot! I think she really enjoyed it and afterwards she got to go to McDonald's! We are always pretending like we are going there but she really got to go today. The first time she has been anywhere besides the hospital since April 24! She was smiling so big while she ate her french fries! She always brings a smile to everyones face! What a blessing she is. Allen got to be there! Brennen walked also! I think he had a good time walking for his sissie! They raised over $27,000! Wow! It has been a great day! We are praying and looking forward to Oct. 6th! I will try to put pictures of the walk on the site sometime tomorrow! Thanks for checking in!
Jeri Ann and Reagan

TRIP TO ER!

Well, as if Reagan needed anything else, she had to take a trip to the Emergency Room last night! She was being pushed in her wheelchair inside the house, when all of a sudden boom! Reagan hit the floor. Slid out of her wheelchair and hit the door and the ceramic tile! All I can say is THANK YOU GOD FOR WATCHING OVER REAGAN!!!!! That is the only way she was not completely broken up! They did a CT scan and didn't see anything alarming, but they are not familiar with Reagan or pediatrics. I think they would have been able to tell if anything in her skull were fractured. Her doctor in Utah is out of town until the 25th and the lady in charge of everything in Birmingham is out of the office until tomorrow. Crazy! She is doing well, we would just like for someone that has seen her before to review the scans and give us their opinion. Thank God Allen was here. He rode to the ER with her via ambulance. She is doing well. Please continue to pray that she gets stronger everyday. We have a tentative date of Oct. 7 to go back to B'ham and remove the halo.